The Children’s Lobby gives dedicated supports to caregivers of children with disabilities or chronic illnesses with concerns and advocates for families to make improvements “in the system.”
What is “Lobby4Kids”?
The Children’s Lobby was founded as a self-help group in order to unite various initiatives and organizations in this field and, through joint action, to increase public awareness of the concerns of those affected on the one hand, and to create a network for affected families and from existing organizations on the other.
Children cannot speak for themselves. Parents and caregivers need to voice their concerns and fight for them. Especially in the case of children with disabilities or chronic illnesses, caregivers often no longer have the strength to make improvements. The Children’s Lobby cares about the concerns of these children and families and provides support wherever possible.
Areas of Lobby4Kids’ approach:
- Individual case support: In the case of major concerns and problems of affected families, telephone support, referral to the right authorities, assistance in the clinic, mediation between affected persons, doctors or authorities.
- Internet quick help: In case of inquiries from affected persons under individual case histories for e.g. therapy devices, specialists, official tips etc., a circular email goes out immediately to all members of our network. Normally, minor problems are solved within 48 hours. Normally, minor problems are solved within 48 hours.
- Public relations: Statements on explosive topics, circular e-mails to politicians and health representatives of all parties, formulation of practical concerns with proposed solutions, presentation of the Children’s Lobby at congresses.
A True Story
The shortcomings of our health care system become unmistakable when it comes to children with special needs. Lobby4Kids
DR. IRENE PROMUSSAS
chairwoman of "Lobby4Kids""We do not put a stamp on any child"
